Meet Catherine Cooper, a member of our Otago Disability Leadership Group, as she shares her family’s autism journey and the importance of early action.
It all started with my eldest daughter. We received her autism diagnosis later than we would have liked, and it was an eye-opener. I couldn’t help but think, “What if we had known sooner?” That question led me down a path of discovery and, ultimately, to a principle I now swear by: Beginning Early.
Now, I know what you’re thinking. “Early? But I’m already juggling a million things!” Trust me, I get it.
When we finally understood our daughter’s needs, it was like putting on glasses for the first time. Suddenly, so many things came into focus. We realised how much earlier support could have helped her feel more confident and engaged in activities. It was a bittersweet moment – relief at finally having answers, mixed with a tinge of regret for the time lost.
But here’s the thing about parenting: it’s a constant learning experience.
Fast forward to today. We’re going through the diagnosis process with my youngest son, and what a difference our experience has made! We’re working hand-in-hand with his school and doctor, making sure we have all the information we need for a thorough assessment. And you know what? It feels empowering.
The school has been incredibly supportive, moving quickly to assess his learning needs. It’s like night and day compared to our previous experience. We’re hopeful that by starting this journey early with our son, we can spare him some of the struggles his sister faced.
So, what’s the takeaway here? If you have even the slightest inkling that your child might be on the autism spectrum, don’t wait. Start the conversation with your paediatrician. Seek out resources. Trust your instincts.
I took a course to better understand my daughter’s thought processes and triggers, and it was a game-changer. Remember, you’re your child’s biggest advocate. The more you understand, the better you can help others understand them too.
Setting clear boundaries and having future plans in place early on has been crucial for us. It gives everyone – family, teachers, therapists – a roadmap to work from. And when everyone’s on the same page, it makes a world of difference.
There are days when I still feel like I’m fumbling in the dark. But starting early? It’s like turning on a flashlight. It doesn’t solve everything, but it sure makes the path ahead a lot clearer.
So, to all you amazing parents out there, whether you’re just starting this journey or you’re well on your way, remember this: Your child’s future is full of possibilities. By taking action early, you’re giving them the best shot at a bright, fulfilling life.